There are some excellent resources for both children and adults with disabilities. If a child is found to have a disability early on, it is important for parents to get in touch right away with their state's program for these kids. I list them all in my book, Raising a Handicapped Child, and I am sure you can find the telephone number for your state's program on the Internet. Each state offers special help such as special school exams, speech therapy, PT and OT. The earlier help is given the better a child's life will be.
One of my favorite programs is Protection and Advocacy. They have lawyers who will answer questions about problems for those with disabilities. They have helped my patients many times and there is no charge. Their number is 1-800-776-5746.
It is also important for parents to find a medical doctor who has training or interest in disabilities. The usual 15 minutes that most doctors seem to spend these days is not what you want. I always spent whatever was needed to help my patients. Not only are medical examinations important but there are also many forms that need to be filled out and calls to make if a child or adult has a disability.
Many adults seek help from sports' doctors. They do not have the needed training. A doctor who specializes in rehab medicine may be a good choice but you should check the doctor's training and reviews. Nurse practitioners, osteopaths, and chiropractors do not have the training you need. Many big hospitals have specialists who can be helpful. Agencies connected with the type of disability a child or adult has can often be helpful. Some are not because they refer to doctors who are not qualified.
I have found two hospitals in the U.S. that do a wonderful job with patients with disabilities. One is Los Angeles Children's Hospital and the other is Cincinnati Children's Hospital. For children or adults with muscle weakness I use Dr. Selcen at the Mayo Clinic. She is outstanding.