It is heartbreaking for parents and family members when an infant is born with a problem, such as spina bifida or cerebral palsy. I have been impressed with the strength that some parents have shown and been dismayed at some who did not want anything to do with a child with a disability.
One of the first two things that needs to be done is find a physician who is caring and and willing to take on the task of caring for a baby with problems. The doctor who delivers the baby could have a good suggestion or an agency taht cares for similar babies. Other parents who have a special needs child can be helpful also.
The second thing that is MOST important is to connect with your state's agency that handles children with disabilities. Most states can help financially. You can find the state agency on the Internet or a good social worker at the hospital should know this resource. Even if you have good insurance, you may need some financial help because hospital bills can be very large.
Another work of advice is taht mothers in particular should not spend most of their time at the hospital but be sure they take time for themselves and their own needs. Caring for a baby with a disability can take a great deal out of a person and if a parent does not take care of themselves.
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